top of page

Our Fighter

Garrett has been diagnosed with NCL (CLN1-infantile) or Batten Disease. It is a rare, genetic, fatal neurological disease.  Within the next days, months and years Garrett will regress and will lose his vision, speech, movement, cognitive abilities and have his life taken too early.  This disease will steal Garrett's body and mind but for us lucky enough to know Garrett we will always know who he is.  If you see Garrett please recognize him and let him share some of the magic we receive daily. Click here to follow Garrett's Blog.

bottom of page