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Garrett Update

Batten Disease is horrific!!  Everyday it continues to steal more of our Garrett and many other children.  Garrett is 6 years old but declines daily.  Garrett has lost all his vision.  He no longer can walk on his own.  He cannot eat by himself and is losing weight.  He has cluster seizures and vomits.  He no longer plays trains by himself.  Garrett cannot do anything by himself.  Garrett needs constant 1 on 1 care.  Our family faces daily challenges.  With all this sadness we still find comfort in Garrett's contagious laughter!  Batten Fighters we need to continue our fight to cure this disease!!



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Garrett the Grand - Batten Fighter, P.O. Box 2, Gilbertsville,  PA 19525. We are a non-profit tax exempt charitable 501(c)(3) 4. organization, federal tax ID #47-1975935